Assessing Resources Devoted to Electronic Reporting and Automation Among Central Cancer Registries Meeting National Program of Cancer Registries (NPCR) Quality Standards

Authors

  • Florence K. L. Tangka Centers for Disease Control and Prevention
  • Jenny Beizer RTI International
  • Maggie Cole-Beebe RTI International
  • Amarilys Bernacet RTI International
  • Stephen Brown RTI International
  • Paran Pordell Centers for Disease Control and Prevention
  • Reda Wilson Centers for Disease Control and Prevention
  • Sujha Subramanian Implenomics

DOI:

https://doi.org/10.33423/jmpp.v25i4.7397

Keywords:

management policy, cancer registry, electronic reporting, cost

Abstract

The Centers for Disease Control and Prevention (CDC) has emphasized a need for data modernization initiatives (DMIs) to improve the quality and timeliness of cancer surveillance data. To guide such DMI efforts, we need data on the resources required to generate high-quality data. Twenty-one central cancer registries (CCRs) collected data from July 2020 to June 2021. We explored the potential relationship between resources for (1) electronic reporting and automation and (2) the quality of CCR data. We then compared activity-based costs of registries that always (n = 8), sometimes (n = 6), or seldom/never (n = 7) met data quality standards for completeness, timeliness, duplicate rate, and missing values. We found the registries that consistently met data quality standards used more resources on setting up processes to acquire data, training staff, and processing data. Compared to high-quality registries, registries that seldom/never met quality standards spent the most on case finding/data abstraction of non-hospital records. This study provides key findings for resource use, which can guide advancements when implementing electronic reporting and automation to improve CCR operations.

References

Beebe, M.C., Subramanian, S., Tangka, F.K., Weir, H.K., Babcock, F., & Trebino, D. (2018). An analysis of cancer registry cost data: Methodology and results. Journal of Registry Management, 45(2), 58–64. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/3153312

Beebe, M.C., Tangka, F.K., Beizer, J., Bernacet, A., Brown, S., Pordell, P., . . . Subramanian, S. (2023). Exploring central cancer registry activity-based costs as electronic reporting evolves. [Manuscript in preparation].

Centers for Disease Control and Prevention. (2023). Data modernization initiative. Retrieved from https://www.cdc.gov/surveillance/data-modernization/index.html

Centers for Disease Control and Prevention. (2023). NPCR Standards. Retrieved from https://www.cdc.gov/cancer/npcr/standards.htm

Edwards, P., Bernacet, A., Tangka, F.K.L., Pordell, P., Beizer, J., Wilson, R., . . . Subramanian, S. (2022). Operational characteristics of central cancer registries that support the generation of high-quality surveillance data. Journal of Registry Management, 49(1), 10–16. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10036081/

Jones, D.E., Alimi, T.O., Pordell, P., Tangka, F.K., Blumenthal, W., Jones, S.F., . . . Richardson, L.C. (2021). Pursuing data modernization in cancer surveillance by developing a cloud-based computing platform: Real-time cancer case collection. JCO Clinical Cancer Informatics, 5, 24–29. https://doi.org/10.1200/CCI.20.00082

Subramanian, S., Tangka, F., Edwards, P., Hoover, S., & Cole-Beebe, M. (2016). Developing and testing a cost data collection instrument for noncommunicable disease registry planning. Cancer Epidemiology, 45(Suppl 1), S4–S12. https://doi.org/10.1016/j.canep.2016.10.003

Tangka, F.K.L., Edwards, P., Pordell, P., Wilson, R., Blumenthal, W., Jones, S.F., . . . Subramanian, S. (2021). Factors affecting the adoption of electronic data reporting and outcomes among selected central cancer registries of the National Program of Cancer Registries. JCO Clinical Cancer Informatics, 5, 921–932. https://doi.org/10.1200/CCI.21.00083

Tangka, F.K., Subramanian, S., Beebe, M.C., Weir, H.K., Trebino, D., Babcock, F., & Ewing, J. (2016). Cost of operating central cancer registries and factors that affect cost: Findings from an economic evaluation of Centers for Disease Control and Prevention National Program of Cancer Registries. Journal of Public Health Management and Practice: JPHMP, 22(5), 452–460. https://doi.org/10.1097/PHH.0000000000000349

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Published

2024-12-08

How to Cite

Tangka, F. K. L., Beizer, J., Cole-Beebe, M., Bernacet , A., Brown, S., Pordell, P., Wilson, R., & Subramanian, S. (2024). Assessing Resources Devoted to Electronic Reporting and Automation Among Central Cancer Registries Meeting National Program of Cancer Registries (NPCR) Quality Standards. Journal of Management Policy and Practice, 25(4). https://doi.org/10.33423/jmpp.v25i4.7397

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